He agreed they were being safe this past weekend when they admitted us. He also liked and preferred that, as do we (even though it was hard). It gave them a chance to give her some new meds while being monitored, which was helpful. She certainly responded; last night she slept so well, and she hasn't been grunting/groaning at all!
Willow's heart function looks good! It's still difficult and slow for her heart to heal, since it has literally been cut and reconstructed. It just takes time. The fluid still seems to be just her little body trying to heal. There aren't any heart function concerns at this point, and there aren't concerns about infection or anything else. Little Willow just needs a lot of diuretics to help her body catch up! We are trying to get the right mix for her going. They are also carefully watching her blood levels for any side effects of those meds. We go back again next week!
So grateful to see our girl comfortable again during sleep. What a full day again! It always is at Children's, even on days we think are going to be short and sweet!
Pray for us please as we try to balance working with doctor appointments. I think we had prepared ourselves well for the difficulties during and immediately after surgery. Being readmitted this past weekend was something we hadn't particularly prepared for (obviously), and the rest of our lives are not on pause anymore, if that makes sense. We would appreciate prayers for all of us as we continue to have frequent full day appointments as Willow heals. We are so proud of our girl. Today she was much less scared at the hospital doing various tests. You go, girl!
Praying for all of you. When can I come sing and do shakers with Willow? Email, call, or text if and when that would be helpful. 817-874-4067
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